Friday, August 22, 2008

Strange realities of life

The boy had a sparkling friendly eyes and a broad infectious smile. When I first saw his photo in Mumbai, I could not digest that such a tragedy could be possible in his life. I made it a point to see this boy during my short visit to Coimbatore.

During our onward train journey of 32 hours to Coimbatore from Mumbai, our a/c compartment had seen the vibrant atmosphere of a large extended Tamil family settled in Mumbai, mixing all tongues of Tamil, English, Hindi and Marathi. My insecurity of traveling alone with my son for such a long journey was thoroughly vanquished by their non-stop chatting and eating. My ears were filled with noises all throughout.

Upon reaching Coimbatore, I was asked to reach the mandapam immediately by my mother-in-law to attend the functions related to the upanayanam of my husband’s cousin’s son. I had to fresh up having no time to take rest and rushed immediately to the function hall. The next day was the upanayanam and I had the opportunity to meet almost all of my husband’s relatives. Most of them were pleasantly surprised to see me alone with Atul and had a nice time chit chatting and heart to heart talks with some of them. My mouth and ears had a wonderful time throughout.

There was only one day left for me before leaving for Mumbai and I needed to cover visits to a few houses, a Hanuman temple and shopping with my sister-in-law. The first half of the day had been utilized for the temple visit and shopping and reached home at around 2:30 p.m. with a headache. I felt very tired to even think of the pending visits. But I don’t wish to go back on my words any day and again started off with Atul and Father-in-law. I was appreciating myself of my positive approach to pains.

When I called this boy’s mother about my visit, she requested me to come to her house after 6 p.m. as she has to bring him back from school. Well, I planned my trips accordingly, visited my friends’ families, accepted their loving hospitality, requested them for a Saridon to treat my unbearable headache and at the end entered into his house. The boy’s father is our distant relative though I remember only his parents as they used to visit us on January 1st of every year when we were in Karur. My headache was gone by the time I saw him; so also my head weight.

Let us call this 10-year old boy wonder as ‘H’. When I first saw him, I used my hand gestures to ask, “Eppadi irukka? (How are you?)” His mother immediately told me not to use any. H looked at my lips and replied, “Nalla irukken” in an unclear tone. During our conversation, I came to know that

* he could not speak because he is deaf;
* he is not supposed to communicate with sign languages as it spoils his speaking ability;
* he has to see the lip movements and reply in words;
* he is taught only one language i.e. Tamil as that is the local language and all his subjects are in Tamil only;
* even mother tongue is not taught or spoken to him;
* it is extremely difficult to teach different languages as the child may get confused;
* each and every word has to be taught repeatedly and patiently till he understands;
* whenever he commits mistakes in pronunciation (as he cannot hear the different syllables), it takes a lot of pain and effort on the mother’s side to correct him;
* it is difficult to handle him during discussions of the family matters as he wants to know each and everything;
* his syllabus comprising of Maths, Science, History & Geography is tough for his age;
* he is interested in drawing and painting and produces beautiful sketches whereas his handwriting is not good;

and so on…

I could see the understanding of his elder brother, the sacrifice, patience and love of his mother and the care of his father. I could not control my tears when I saw the beautiful smiles of the mother and the son. Atul was deeply touched by this meeting and became humble. When I asked H before leaving if he would come to Bahrain (“Bahrain varriya?”), immediately he said, “Varrein.” His father explained to him that he has to take a flight for which he said, “Enakku theriyum.” Aha! Mixture of so much innocence and knowledge emanating from his noiseless world!

Many times H could not understand my lip movements and his mother had to explain slowly in a different way. The smile on his lips never faded even for a moment. I don’t know if he understands the limitations of his life or if visits of people make him feel inferior. I can only console myself that I was extended invitations by them many times which I had honoured without fail.

The life of H is one of silence and he is taught how to make sounds diligently. It is an ongoing struggle for the boy, parents and school. Here I am in the world of sounds all the time, either at the giving or receiving end. And I wish to run towards silence even at the slightest given opportunity.

I had to handle my vow of silence with sign language and my son’s help to receive the courier yesterday (August 21, 2008). Probably, the courier personnel might have thought that I have speaking disability.

Strange are the differing perceptions, limitations, realities and goals of life!

8 comments:

Latha said...

Dear Padmaja

I am also moved by this episode. Immense patience is required to handle such children at home. Their parents have rightly understood his needs I believe. May God bless the boy.

Raj Arumugam said...

An inspiring anecdote, Padmaja.

Before I started living in Australia I rarely saw 'disabled' people in public. Societies mostly keep them invisible.

Here in Australia I've seen and continue to see families taking their 'disabled' relatives (of all ages)out to public places.
It was something new to me when I first arrived, but it's a natural part of public life to me now.

These families do receive some financial support from the govt, but sadly this is dwindling due to various pressures.

Padmaja said...

@Latha : It is indeed a very moving episode. He has occupied the prime seat in my heart mainly because of his beautiful smile.

@Raj : Glad to know about the free support being extended in Australia for these special children. In India, the situation has to improve still. :(

അപരിചിത said...

truly a touching post!

really the strange realities of life!

we r always in the safe zone of life!there r people thriving in the very adverse situations...ur post is too good!

thanx for letting us read this post!and knw abt the realities!

happy blogging!
:)

Padmaja said...

DE - How happy I am to see you here! Thanks for your patient reading. Wish to see you more.

Cheers!

Anonymous said...

An emotional incident and we have to be happy of what all we have!!

Anonymous said...

It is observed that some profoundly deaf people are benefitting from cochlear implants. Can such a device help the boy? Only extensive diagnosis by an ear specialist and audiologist can tell. Many US hospitals do provide free treatment to such kids on humanitarian basis. Whether with the aid of implant or without it, the boy will definitely grow into a fine independent person. 've seen a visually impaired individuals practicing law and music. What is not possible, if courage and luck are not wanting?

Padmaja said...

Anonymous,

I have sent your comments to my brother to forward the same to the boy's parents about the possibility of cochlear implants and your positive remarks. Thanks a lot for your feedback.

Padmaja